Hello! I'm Hanh and I am a newbie. Just joined today :). I am a patient navigator for a clincial study for Alport syndrome. Alport syndrome is a serious, rare, inherited genetic condition characterized by kidney disease, hearing loss, and eye abnormalities. Unfortunately, there is currently no known treatment for Alport syndrome and current therapies are only able to control the rate of progression of the disease and lessen symptoms.
I am interested in connecting with friends that have Alport syndrome. For more information about this research study (CARDINALclinicaltrial.com).
Look forward to connecting with everyone!