Transplant Recipients

This is a group for people who have received an organ transplant. Share stories of your surgery, recovery and more!

Members: 40
Latest Activity: May 7

Discussion Forum

Consider becoming a Transplant Ambassador in Ontario

Started by pdboy. Last reply by Louise May 7. 1 Reply

Good Day All I have started process to become a Transplant Ambassador in Hamilton area. For more information -   Open…Continue

Tags: kidney, Ambassador, transplant

BK virus

Started by Kim Edwards. Last reply by Kim Edwards Feb 9. 2 Replies

Hi I just got a call yesterday from clinic and they told me that I have the BK virus. They halved my myfortic to allow my body to fight the virus. I was wondering if anyone has had this after…Continue

How long have you had your transplant

Started by angieskidney. Last reply by Ron Grant Dec 12, 2017. 17 Replies

I am coming up on my transplant anniversary next month but not sure if that would actually be considered the anniversary since it did not work at first and I couldn't come off dialysis completely…Continue

Tags: anniversaries, length, transplant

Hair loss after 7 weeks of transplant.

Started by Mar-bar. Last reply by Lori Feb 7, 2017. 3 Replies

Hi my name is Mary. On December 6 2016, i had a kidney transplant. Both of my kidneys were removed because they were covered in cysts (polycycstic) a total of 23kg. Too big for my body.Recently my…Continue

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Comment by Salvatore on January 5, 2018 at 10:24

Congrats Ron! Fantastic! Wish you all the happiness and health! 

Comment by Ron Grant on January 5, 2018 at 10:12

Past tense..."was" around the 950-1000 mark.

I had a transplant in Feb. 2017. All good now.

Comment by Salvatore on January 5, 2018 at 9:17

Sorry Rob, lol d*** auto correct. 

Comment by Salvatore on January 5, 2018 at 9:07

Hi Rin,

thank you for sharing. I am sorry you cannot find a kidney. 

Hang in there! You are in my prayers and thoughts!

salvatore :)

Comment by Ron Grant on January 5, 2018 at 8:08

Hi Salvatore,

I read an earlier posting of yours where you stated your creatinine was creeping up to 280. If it's any comfort, mine was 3x that before dialysis, and while on dialysis for six years, was around the  950-1000 mark.

Comment by Salvatore on January 4, 2018 at 21:44

Hi all

Comment by Salvatore on December 22, 2017 at 21:48

Thanks Ron, I been blessed!

never give up! 

Comment by Jan on December 22, 2017 at 16:48

I have just started to reconnect after a short break from doing so.  I am at 3 & 12/+  years since my transplant, and doing very well.  Creatinine at 82, only talk to transplant once every six months at my biennial appointment.

I also hate sunscreen.  However, as we need to use it, Neutragena has a stick, SPF 50, which is easy to use, and lightweight on the skin.  And because it looks like a deodorant stick, you can carry it in your carry- on baggage, and not put it in that little Baggie.

Columbia clothing company, and Kuhl's both have long sleeve shirts that are UFP 50.  I have one of each and wore them this past summer and they did the trick.

Comment by Lori on December 22, 2017 at 16:15

Note to Salvadore  I had dry, itchy skin and legs muscle cramping  prior to my transplant and dialysis.  It was caused by too high of phosphorus  levels in by blood.  I'm on prednisone now which isn't causing it.

Comment by Ron Grant on December 22, 2017 at 14:01

A note to Salvatore...33yrs! That's what I call inspiration. I just had a transplant this year, and that's the kind of thing I like to read.


Members (40)



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