Young adults living with kidney problem/ on dialysis , waiting for transplant or had transplant

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Young adults living with kidney problem/ on dialysis , waiting for transplant or had transplant

This is for Younge adults that are on dialysis, waiting for transplant , have had a transplant or just finding out they have kidney disease.

Location: Edmonton/st.albert
Members: 22
Latest Activity: May 8

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Comment by Ana on May 8, 2018 at 11:53
What would you like To know ? Any specific questions ?
Comment by Shandy on May 8, 2018 at 8:35

I'm new to this.  Looking into find a living donor, but also needing to make some decisions regarding dialysis.  Would love to hear from you your experiences.  

Comment by Ana on May 7, 2018 at 19:10
Hi everyone ! I am new to this site and group just wanted to introduce myself . I’m Ana I’m 25 years old from Abbotsford-chilliwack bc area I am was born with kidney disease and I currently on pd and I have already had 1 transplant and am waiting for another one.
Comment by TrencherFan31 on February 15, 2017 at 9:47

Hi everyone I have been on dialysis since November 2016. I had one kidney transplant in 2010 which failed. I live in thunder bay

Comment by Stanley Michael Edore on December 15, 2016 at 9:33
Hi everyone i just started dialysis i live in Moncton
Comment by Yellowknifewife on February 4, 2015 at 14:50

Hi everyone.  New to the site, and trying to find out some information and support.  My husband has reached stage 4 of Kidney Disease from his Alports Syndrome.
Question:
Why do we have to wait to the point of dialysis or 10%, before a transplant.  Can I not just give him one of my kidneys now? while he's still fairly healthy?

Comment by Beth on January 12, 2015 at 22:14
Thank you so much for the link! The chart is exactly what I was looking for!
Comment by JLPillitteri on January 12, 2015 at 19:18

I thought I would attempt to answer a couple of the questions...

Its likely best to ask the doctors but this link explains the compatibility including the positive and negative parts. 

http://mytransfusion.com.au/node/blood-groups-and-compatibility

Everyone is different after hemo in centre but I personally was exhausted after each run.

Comment by Beth on January 11, 2015 at 23:21
quick question: when it comes to being a compatible blood type between a live donor and a recipient, does it matter if a blood type is positive or negative, or is it only the blood type like AB, B, etc. that matters? I've googled this but it's hard to articulate what I'm asking...
Comment by Pratik Tiki Patel, CPA, CGA, PMP on January 11, 2015 at 18:24
Hi guys I'm 27 and have just started hemodialysis at the hospital. I'm waiting to hear all the options that I have regarding keeping on track with life? What is nocturnal dialysis is that 8 hours a night? I use to have that when I was 13 years old. The one I have been recommended is four hours three times a week which seems to be a drain. I seem to be pretty tried after a session was this normal for you too?
 

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A Kidney Foundation Program Coordinator will talk with you and discuss your request to be matched with a Peer Support Volunteer.

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