DarcyMcS1987
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Transplant December 18th

Started this discussion. Last reply by Sharri Stull Anderson Jan 9, 2016. 5 Replies

Just waking up in the hospital 2 days after getting a kidney from my wife! So far everything is going as well as expected. My creatinine has dropped from 1180 pre-transplant, to 164 just 2 days…Continue

Transplant!

Started this discussion. Last reply by largedaryl Nov 19, 2015. 1 Reply

Yesterday we got the news that my wife has been cleared to donate me a kidney, and we are scheduled to have the transplant done on December 18th.  It really is such a whirlwind of emotions that have…Continue

Dialysis

Started Sep 12, 2015 0 Replies

Just wondering if anyone else who is doing hemodialysis had any issues with infiltration when they first started.  I had my first treatment tuesday for 3 hours and everything went great - but the 2nd…Continue

 

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Sharri Stull Anderson replied to DarcyMcS1987's discussion Transplant December 18th
"Congratulations I hope you are doing well.  I hope your wife is doing fine also. My husband gave me his kidney in March of 2015.  10 month labs  gfr 92 and creatinine 68.  Live is wonderful on this transplant journey. "
Jan 9, 2016
Hilary replied to DarcyMcS1987's discussion Transplant December 18th
"Thank you for sharing the news Darcy! Wishing you and your wife a good recovery. Please keep us up to date on your progress:) Best wishes! Hilary"
Dec 24, 2015
fizbin replied to DarcyMcS1987's discussion Transplant December 18th
"Same to you!  Happy Holidays and Happy New Year!"
Dec 22, 2015
largedaryl replied to DarcyMcS1987's discussion Transplant December 18th
"Glad to hear.. should be feeling much better soon with a fully functioning kidney cleaning your blood.. all the best. "
Dec 22, 2015
fizbin replied to DarcyMcS1987's discussion Transplant December 18th
"It only gets better.  I also had my wife donate a kidney to me in October 2015.  Been two months, no problems.  She is healing well as am I.  Best of luck!  My creatine went from 1100 pre-op to a steady 92!!"
Dec 21, 2015
DarcyMcS1987 posted a discussion

Transplant December 18th

Just waking up in the hospital 2 days after getting a kidney from my wife! So far everything is going as well as expected. My creatinine has dropped from 1180 pre-transplant, to 164 just 2 days after.  Its still a long road ahead, but I feel so overjoyed to get a second chance at life!See More
Dec 21, 2015
largedaryl replied to DarcyMcS1987's discussion Transplant!
"Great news!  I am sure you have read about the donor risks... they sound very minor to me... other than it is surgery.  All the best. "
Nov 19, 2015
DarcyMcS1987 posted a discussion

Transplant!

Yesterday we got the news that my wife has been cleared to donate me a kidney, and we are scheduled to have the transplant done on December 18th.  It really is such a whirlwind of emotions that have flooded over me. I am excited to have the opportunity to get my life back, but at the same time I am beyond nervous about my wife going through surgery.  I know if the shoe was on the other foot, I wouldn't hesitate a second to give her a kidney - but when it's you in this situation you can't help…See More
Nov 19, 2015
DarcyMcS1987 replied to The Kidney Foundation of Canada's discussion Introduce Yourself!
"Hi Shirley, I wanted to weigh in, because I was recently in the same situation you are.  I am 28 years old, and began hemodialysis 3 weeks ago.  I too was feeling horrible prior to starting dialysis - I was still working full time as a…"
Sep 25, 2015
DarcyMcS1987 posted a discussion

Dialysis

Just wondering if anyone else who is doing hemodialysis had any issues with infiltration when they first started.  I had my first treatment tuesday for 3 hours and everything went great - but the 2nd treatment on thursday unfortunately my fistula was infiltrated, forcing us to stop and wait until this monday for another treatment.  Is infiltration common with new fistulas? I had mine created on June 15th.  Any insight from fellow H.D. patients would be great!See More
Sep 12, 2015
DarcyMcS1987 commented on DarcyMcS1987's blog post GFR and dialysis
"Thanks for the reply, Liz! I had my AV fistula surgery monday, and recovery so far has been a breeze.  Still holding out hope that I won't have to worry about dialysis until the wedding is over, but if it does then we will deal with it…"
Jun 16, 2015
liz m commented on DarcyMcS1987's blog post GFR and dialysis
"Hi Darcy: agree with Blake's comment. I now have a GFR of 10% and asked, at my last visit with the renal team, the very thing you are asking. It is a combination of factors, not just the GFR % that will determine dialysis. It is more about how…"
Jun 16, 2015
DarcyMcS1987 posted a status
"Had my AV fistula put in today - wasn't nearly as bad as I expected. Here's hoping it heals up nicely!"
Jun 15, 2015
Blake commented on DarcyMcS1987's blog post GFR and dialysis
"Hi Darcy. As far as I know you could be a candidate for dialysis at any point from 10% and down. I started dialysis at 6%. For me it wasn't based on my GFR but by the level toxins accumulating in my system. GFR is a good why to determine…"
Jun 8, 2015
DarcyMcS1987 replied to The Kidney Foundation of Canada's discussion Introduce Yourself!
"My fiancee' is in the middle of having all her work-up done.  We are both O positive, and have 2/6 matching antigens.  She is still waiting on 24 hour urine results to test her kidney function, but so far so good.  We are getting…"
Jun 2, 2015
DarcyMcS1987 replied to The Kidney Foundation of Canada's discussion Introduce Yourself!
"Hi Pete, I am 28 years old, and working full time as a physiotherapist - so I live quite an active lifestyle, including a fairly physical job.  My understanding is that with hemo at least I will not be restricted with regards to lifting, and…"
Jun 2, 2015

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I am a 27 year old physiotherapist, living with IGA nephropathy

DarcyMcS1987's Blog

GFR and dialysis

Posted on May 30, 2015 at 20:39 3 Comments

Hi everyone,

I am wondering if someone can answer a question for me - I have IGA nephropathy, and am now at 10% GFR, I had bloodwork done a few days ago and my creatinine was at 601.  Other than feeling quite tired all of the time, I have no other major complaints - I am working full-time as a physiotherapist, exercise daily, and continue to do everything I have before being diagnosed with IGA.  Aside from the IGA I am very healthy.  Im wondering if there is a "standard" number at…

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just a question

Posted on February 1, 2015 at 18:59 4 Comments

Hi all,

I am wondering if any of you received a live-donor transplant, and if so what the whole procedure was like.  I meet with my nephrologist in 2 weeks, and the plan was to begin discussing a live-donor transplant and getting my potential donors tested to see if anyone is a match.  I am still at 18% kidney function, and am not on dialysis yet, though I am going to meet with the surgeon for a fistula consult soon.

Im wondering what the whole time-line was like for those of…

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My First Entry

Posted on December 3, 2014 at 19:33 3 Comments

Let me begin by saying how wonderful I think it is that a site like this exists.  I have quickly discovered that living with a chronic kidney disease can sometimes be a lonely place.

I wanted to become a member here so that I have a place to discuss many of my concerns which I am sure all of you have as well.  I find myself feeling lost lately, worried about what the future will look like.  I am 27 years old, engaged to be married to the love of my life this summer. I was diagnosed…

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