Eleanor Sheets
  • Female
  • Huntsville, Ontario
  • Canada
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diet for chronic kidney disease

Started this discussion. Last reply by Eleanor Sheets Apr 3. 3 Replies

Hi There:I am a type 2 diabetic and have been for 21 years. I have recently been diagnosed with Chronic Kidney Disease. There is a diet I am supposed to follow but I don't know what it is. Can anyone…Continue

 

Eleanor Sheets's Page

Latest Activity

jo marshall left a comment for Eleanor Sheets
"Hi Eleanor, I am sorry you are feeling frustrated with the info you don't think you are getting from your Doc. Remember what I previously, you can get your blood work results if you ask. When I was first Dx with CKD, I wanted to know all sorts…"
Sunday
Eleanor Sheets left a comment for jo marshall
"Hi Jo: No, no idea if the number 29 is rising or falling. The doctors keep me in the dark. It must be a big secret or something. I just get frustrated as they say "o.k. now you have Chronic Kidney Disease and here is a book and some pamphlets…"
Thursday
jo marshall left a comment for Eleanor Sheets
"Well, no car certainly adds a wrinkle.  What did you say your eGFR was?  and your creatinine level? Where ever you get your blood work taken, they can tell you how you personally can also get the results, for you are entitled to them by…"
Apr 18
Eleanor Sheets left a comment for jo marshall
"Hi Jo: Yes the Huntsville hospital has a dialysis unit but first we start at the Orillia hospital and then when a space comes up in Huntsville we can go there. And I will be teleconferencing with Dr. Lam. I had the blood work and am having the…"
Apr 18
Barbara Hayward and Eleanor Sheets are now friends
Apr 15
Eleanor Sheets left a comment for Barbara Hayward
"Hi Barbara: I am only starting my journey with CKD. I have had all the blood tests Dr. Lam ordered but am waiting for the ultrasound on my kidneys. Then I will see him and he will set up my treatment plan. For now, I don't think that dialysis…"
Apr 14
jo marshall left a comment for Eleanor Sheets
"I had never heard that kidney disease was inevitable if one had diabetes, but I do know that over 50% of the people I have met also have diabetes.  I assume that the Huntsville H has a kidney unit.  That makes it handy for you, but how…"
Apr 14
Eleanor Sheets left a comment for jo marshall
"Hi Jo: I hate this storm and it is supposed to keep coming for awhile yet. I have not met any of the other doctors down there yet. I guess that I am a newbie. I have Type 2 diabetes (insulin dependent) and, as my family doctor said, kidney disease…"
Apr 14
jo marshall left a comment for Eleanor Sheets
"Hi Eleanor!  Yes, I know Dr. Lam!  He is one of the 4 Doctors who rotate through the Dialysis Unit and have clinics at the Orillia hospital.  I see Dr. Poulopoulos.  I like him the best for he is my Doc, but I really trust them…"
Apr 14
Eleanor Sheets left a comment for jo marshall
"Hi Jo: Yes I go to Dr. Lam in Orillia. Want to be friends. You, Barbara and me. What a group eh? Do you go to the Orillia hospital? I will go to Huntsville but want to know what stage you are at with your Kidney Disease? Thanks.  Eleanor"
Apr 14
Eleanor Sheets left a comment for Barbara Hayward
"Hi Barbara: Can we be friends? We have the same health problem and maybe you could help me get started?"
Apr 14
Barbara Hayward left a comment for Eleanor Sheets
"Hi Eleanor, I"m a 70 year young woman who is diabetic ( type2) and have renal failure.  After attending the kidney clinic for over 4 years I started on dialysis last December.  Found the twin bag too limiting for my busy life and in…"
Apr 12
Eleanor Sheets left a comment for Barbara Hayward
"Hi Barbara: I noticed that you live just down the highway from me. I live in Huntsville Ontario. Maybe we could be 'kidney disease' friends. Let me know. Take care and God Bless!!. Eleanor Sheets, Huntsville, Ontario,"
Apr 11
Eleanor Sheets left a comment for Barbara Hayward
Apr 11
Eleanor Sheets left a comment for Judy Conte
"Hi: I love your cat. She looks like a half bandit. My cat is named Chloe and she is a Diva. She keeps me company but only when she wants to. Take care and God Bless! Eleanor Sheets, Huntsville Ontario Canada"
Apr 11
Eleanor Sheets posted a status
"I can tell you that I am waiting for ultrasound on kidneys then will know more."
Apr 6

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At 13:03 on April 22, 2018, jo marshall said…
Hi Eleanor, I am sorry you are feeling frustrated with the info you don't think you are getting from your Doc. Remember what I previously, you can get your blood work results if you ask.
When I was first Dx with CKD, I wanted to know all sorts of things so that I could stop whatever was happening. Well, neither info nor the renal food plan could stop it. And even now when my function appears to be getting better, there is still nothing I can do except take care of me properly. You have said you went to the kidney clinic where you met the people who can guide you. They who have your records can guide you far better than someone who doesn't know what your blood work shows. I hope you are satisfied with your meeting with Dr. Lam. He is very knowledgeable. jo
At 13:06 on April 18, 2018, jo marshall said…

Well, no car certainly adds a wrinkle.  What did you say your eGFR was?  and your creatinine level? Where ever you get your blood work taken, they can tell you how you personally can also get the results, for you are entitled to them by law.  You can see your entire medical file if you ask!

Teleconference is much better than no visual contact.  I would think that you have to ask Dr. Lam for a referral to Kidney Centre at the Orillia Hospital, OSMH,  and then, because you are at a distance, you might be able to contact the different people over the phone.   I have found them wonderful, and totally knowledgeable. 

If your GFR rating is in the moderate or severely diminished functioning range you are too well for dialysis.  You have to be in renal failure for dialysis.   Personally I think the kidney food plan is what is essential, plus there are various medications that you really should NOT take, like anti-inflammatories.

You most likely have special questions that the fam. doc. nor the diabetic team simply can not answer for it is not their field.

How would you get to Orillia?  Bus or friend?  

ah, I see your GFR is 29.  That is in the severely diminished functioning range.  Any idea how fast it is dropping?

At 12:02 on April 14, 2018, jo marshall said…

I had never heard that kidney disease was inevitable if one had diabetes, but I do know that over 50% of the people I have met also have diabetes.  I assume that the Huntsville H has a kidney unit.  That makes it handy for you, but how does Dr. Lam follow you?  Does he see patients there, or do you have to travel to Orillia to see him?   What they really need to see is your regular blood work, for that shows the status.

At 11:06 on April 14, 2018, jo marshall said…

Hi Eleanor!  Yes, I know Dr. Lam!  He is one of the 4 Doctors who rotate through the Dialysis Unit and have clinics at the Orillia hospital.  I see Dr. Poulopoulos.  I like him the best for he is my Doc, but I really trust them all. 

I was in renal failure and that is what put me in Dialysis, and now my kidneys have started to recover.  No one knows why.

My GFR shows kidney functioning rising into the severely diminished category, not so great, but sure beats failure!  Just as long as the numbers keep rising!  the Doc says there is nothing I can do about it, so I am maintaining the same life style including food plan as I did when I was on Dialysis.

How do you like this storm?          jo

At 13:34 on April 12, 2018, Barbara Hayward said…

Hi Eleanor,

I"m a 70 year young woman who is diabetic ( type2) and have renal failure.  After attending the kidney clinic for over 4 years I started on dialysis last December.  Found the twin bag too limiting for my busy life and in Feb of this year I stated on the "cycler" machine.  Going well so far-- do not have any problems then trying to figure how to travel with all the fluids and equipment etc. Not caused by my diabetes -- I have 4 other relatives with the same problem. Yet the Docs say not genetic just a tendency.  Go figure.

Barb

Eleanor Sheets's Blog

my first appointment with nephrologist

Posted on March 19, 2018 at 22:32 2 Comments

Hi There:

Today (Mar 19, 2018) I saw the nephrologist for the first time and was shocked to learn that I have CKD (Chronic Kidney Disease).  The doctor was surprised that my family doctor had not told me this as he had the urine test results from 4 months ago. 

Now I am scared. I have so much information to absorb that I am sure I will drown in it.

My GER is 29%. Now what?????

Anybody out there can reassure me that this isn't so bad or some other words of…

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