my first appointment with nephrologist

Hi There:

Today (Mar 19, 2018) I saw the nephrologist for the first time and was shocked to learn that I have CKD (Chronic Kidney Disease).  The doctor was surprised that my family doctor had not told me this as he had the urine test results from 4 months ago. 

Now I am scared. I have so much information to absorb that I am sure I will drown in it.

My GER is 29%. Now what?????

Anybody out there can reassure me that this isn't so bad or some other words of comfort.



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Comment by Eleanor Sheets on April 1, 2018 at 11:35

Hi Carolyn:

Thanks for the feedback. Why do all doctors give people this diagnosis then disappear. We need help. I don't have a Kidney office in my town so the internet is where I go and this site is O.K. You are the first one I have had answer my comment. My, oh my, how old were you when you had the stroke. Was that your only one. I can understand about the transplant though. Stay strong. Take care.

Comment by Carolyn black on March 30, 2018 at 16:41

Hi Eleanor

i was told by my doctor about a year and a half ago that I was in kidney failure. I kind of knew it was going to happen when I didn’t know because I had a stroke 27 years ago with blood clots in my kidneys and brain.  But u can never be prepared for it  I was at 32 % approx at that time  2 months ago I was at 16% but I recently just had a check up and it was at 18%  I have started my work up for transplant slowly  usually takes around 6 months to a year to complete all my tests in my case anyway then look for donor.  My mother checked to see if she was a match but  my sister can’t because he has diabetes . 

im new to this forum as well and it’s very scary to go through and for me there is really nobody to speak to in your family cause they can only understand from a perspective of being your family but they don’t know what u will go through so my cousin mentioned this site to get support from people going through the same thing as me 



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