"It’s hard not to look constantly online for answers. I totally understand! My husband used to get so frustrated with me because I would look at my blood results and obsess about what each level was and get myself so worked up about it. The. I…"
"Hi kim. Thanks so much. Venting on line does help. I find the Internet and googling is yr best friend and yr worst enemy. Some of the info is very helpful but at other times it can be downright frightening"
"Hi Holly, hope the support you are receiving is helping. This whole process is scary. I also have pkd. Apparently with pkd the dr’s feel that you can have a higher creatinine before dialysis? I’m not really sure why? It’s hard to…"
"Thanks to those who replied. I really am trying to be positive but I am finding it so hard. My nephrologist hardly talks at all and he is a pkd specialist. All he wants to do is crunch the numbers. I tried to ask him about how long I have…"
"I understand your frustration and fear. I have suddenly had to face kidney issues and while I am older than you, it is just as difficult an adjustment. So many questions and not so many answers. I am definitely struggling with what to eat and…"
"Good Day Holly
Welcome to the forum. Please do not be afraid of the future. Be positive. You have a number of options available. The fistula can be placed in the upper above the elbow. I have seen a number of people in dialysis who…"