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Welcome to Kidney Connect - a place where people living with - and affected by - kidney disease get connected.

To get started:

  1. Fill out your profile
  2. Introduce yourself in the forum
  3. Read blogs from professionals and other patients

Latest Activity

Shannon left a comment for Shannon
"My Husband was just diagnosed with stage 4 CKD at the age of 42. We had no idea he was sick nor do we yet know the cause. Trying to wrap my brain around what this means for him and our future."
yesterday
Shannon is now a member of Kidney Connect
yesterday
Tanya Robertson is now a member of Kidney Connect
Thursday
Chao Xia replied to The Kidney Foundation of Canada's discussion Introduce Yourself!
"Hi everyone. I'm Chao. I just moved to Toronto recently. Both my son and I have proteinuria. My biopsy suggests thin basement membrane disease but my son's biopsy is inconclusive. His genetic testings for Alport Syndrome are negative…"
Wednesday
Chao Xia posted a discussion

Anyone could recommend a pediatric nephrologist for Alport Syndrome in Toronto?

Hi guys,I'm Chao. Just moved to Toronto with my son.My son potentially has Alport Syndrome. He has proteinuria since 1.5 years old, but his genetic testing for Alport turned out to be negative. He has been on ACE Inhibitor for a year now.I'm looking…See More
Wednesday
Profile Iconles avakian, Krista McInroy, Sue and 6 more joined Kidney Connect
Wednesday
Anna Ali joined Chanty's group
Thumbnail

Young adults living with kidney problem/ on dialysis , waiting for transplant or had transplant

This is for Younge adults that are on dialysis, waiting for transplant , have had a transplant or just finding out they have kidney disease.
Tuesday
Profile IconBarb Buchanan and Rosie joined Kidney Connect
Monday
Richard A Viner posted a status
"Taking a day off the machine"
Aug 12
Kim Edwards commented on Leta's blog post Looking back at 50 Months...
"Leta, what an amazing support (literally) you have been to your husband! So happy to hear that you are both well, and living  your best loves possible! Wishing you both continued good health and happiness! Thank you for the info. I really…"
Aug 9
Leta replied to Leta's discussion How do you ease the pain of your loveones?
"You have a really big chance to lower down your meds because you had 6/6 matched and it's your sister!  Congratulations! For me and my husband, he would never get the prednisone out of his rejection meds.  You may have the chance to…"
Aug 9
Kim Edwards replied to Leta's discussion How do you ease the pain of your loveones?
"I did have the bk virus as well but I have never really shown a viral count. Once my levels are at zero for cmv they are going to do a kidney biopsy to see if my body is accepting the kidney as it’s own. My sister donated a kidney to me and we…"
Aug 9
Leta replied to Leta's discussion How do you ease the pain of your loveones?
"I agree with you about getting any information about CMV here. There are few viruses that after organ transplant can affect a person!  My husband and yourself got the same virus.  Some will get the BK virus and and C-diff, ESBL and…"
Aug 9
Leta posted a blog post

Looking back at 50 Months...

I haven't been in this site for a year now... wow, that's more than 12 months.After all, life must go on... work, play, work and play!Robert and I had been so busy doing things that we love the most travelling.For the last two years, every month of…See More
Aug 9
Kim Edwards replied to Leta's discussion How do you ease the pain of your loveones?
"Thank you for responding. I hope that things continue to go well with your husband! There doesn’t seem to be much information on this site about cmv. I am now doing weekly blood tests and it seems to be going down each week"
Aug 9
Leta replied to Leta's discussion How do you ease the pain of your loveones?
"Hello Kim, Sorry I wasn't able to answer you right away. To answer you questions; 1)  After the ordeal of staying at the hospital for a month to treat the cmv for Robert, he's fine now - he's just reached his 50th months of…"
Aug 9
 
 
 

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