"I struggle with palliative care in my profession and in my personal life with my Dad's illness. There is no black and white answers in palliative care, and everything changes with each individual.
In long term care I find we as nursing…"
"My name is Elliott. Will be 71 in Sept.
Diagnosed in 2005, now stage 4.
Don't know if transplant is in my future at in early 70's. Dialoyiss scares me.
On 900 calories a day.
My wife Karen is my ROCK."
Have you ever thought about home care, do they provide those services in your community? There are certain days my Dad and I have picked out where no
matter what I come set him up and put heparin in his bags...my dad's eye sight is…"
Hi,My name is Maria...my main goal in joining this group was to find more insight and understanding into my Dad's illness. My Dad is the cornerstone to my foundation in life, everyone goes to him with their problems, and he has always been able to…See More
"Hi Holly, your gfr is your glomerular filtration rate and is an indicator of what your kidney function is based on your creatinine level, age etc. If your nephrologist hasn't talked to you too much about these things then there is a good chance…"
Had my first blood test since discontinuing pd on June 27. Creatinine and urea have gone up and GFR has gone down. The main reason the doc wants me back on dialysis though is my potassium levels have increased dramatically. It's possible this is a…See More
Thank-you for the reply. I will have to get a lot more savvy about this disease. I have no idea what my gfr is. I guess I will ask at my next appt. In the past 6 mos., I have been reading a lot but I find so much of the information is…"
"Hi Holly, it is very frustrating when the doctors can't give you a definite answer for the future. I also have PKD. I am 43 and my gfr is now 13. I am hoping to receive a transplant from my sister, but they are still doing testing. I was told…"