Welcome to Kidney Connect - a place where people living with - and affected by - kidney disease get connected.

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Latest Activity

Profile IconClaudette Lafrance-Desnoyers, Evelyn Robinson, Jatin Sudhir and 1 more joined Kidney Connect
jo marshall replied to jo marshall's discussion hemoglobin
"Thanks, Kim.   I think I am still adjusting to the news, and have a feeling that I have not left dialysis totally in the past.  One just never knows, but right now I will certainly enjoy the present moment, and remain on my renal…"
Kim Edwards replied to jo marshall's discussion hemoglobin
"That’s great!"
jo marshall replied to jo marshall's discussion hemoglobin
"My kidneys have recovered to the point that I have been removed from dialysis!!!!!!!!!  YEAH!!!!!!!   I will still be closely followed, weekly and then biweekly, but no more machine!! And my latest blood work showed my hemoglobin…"
jo marshall posted a discussion


My hemoglobin has stayed very low for a year now, despite additional liquid iron and increased  Ara something, a hormone to stimulate the kidney.  It would appear my kidneys are recovering somewhat (I learn more tomorrow), but I am still seriously…See More
jo marshall replied to Barry Cohn's discussion Newbie with a question
"Hi Barry,  Welcome!    I was feeling so lousy as my numbers showed increasing renal failure that my Doc never even gave me a choice!  On a Thursday he said go to the Kidney Care Centre at the local hospital for an intro to…"
Profile IconKAMAL, Raymond Cotton, Ezzat and 1 more joined Kidney Connect
Barry Cohn posted a discussion

Newbie with a question

Hi! My name is Barry. I live in Texas and am 71 years old. I have a question about starting dialysis. My doctor wants me to start dialysis soon since my GFR is 14 and creatinine is 6. He says I will need to be hospitalized 5 days to get everything…See More
Mar 11
Hanh Nguyen posted a discussion

Intro Hanh (Alport Syndrome)

Hello! I'm Hanh and I am a newbie. Just joined today :). I am a patient navigator for a clincial study for Alport syndrome. Alport syndrome is a serious, rare, inherited genetic condition characterized by kidney disease, hearing loss, and eye…See More
Mar 9
Hanh Nguyen updated their profile
Mar 9
Hanh Nguyen is now a member of Kidney Connect
Mar 9
Ron Grant replied to jo marshall's discussion intro from jo
"Thanks for the update. Sounds pretty encouraging, as far as the world of kidney issues goes. I did the 4x daily PD treatment for 6 yrs., but it just becomes the new normal, and the HUGE benefit of PD is no hospital visits. Just do it at home, easy…"
Mar 7
jo marshall replied to jo marshall's discussion intro from jo
"Hi Ron,   I don't hope very much in my life anymore, for the disappointment always hurt so much, and my acceptance of kidney failure and dialysis had to be complete in order for me to move on, so when the first news came for a…"
Mar 7
Ron Grant replied to jo marshall's discussion intro from jo
"Hi Jo, Hope for the best and expect the worst. Not sure if that's great advice, but you're never unprepared. Sounds like things are improving, and hope is always a good thing to have on your side. If you're kidneys were good a year…"
Mar 7
Profile IconNancy Jones, Gemma, Alix Boyle and 2 more joined Kidney Connect
Mar 7
kevin joseph updated their profile
Mar 5

Blog Posts

Death and Social Media

Posted by psychonephrology on January 18, 2018 at 13:57 0 Comments

A shaggy Dog Organ Recital

Posted by Jerry diakiw on January 16, 2018 at 8:03 1 Comment

Dignity, death, & diarrhea

Posted by lorlee99 on December 23, 2017 at 17:19 2 Comments



Started by jo marshall. Last reply by jo marshall on Thursday. 3 Replies

Newbie with a question

Started by Barry Cohn. Last reply by jo marshall on Monday. 1 Reply

Intro Hanh (Alport Syndrome)

Started by Hanh Nguyen Mar 9. 0 Replies




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