"Hi everyone. I'm Chao. I just moved to Toronto recently. Both my son and I have proteinuria. My biopsy suggests thin basement membrane disease but my son's biopsy is inconclusive. His genetic testings for Alport Syndrome are negative…"
Hi guys,I'm Chao. Just moved to Toronto with my son.My son potentially has Alport Syndrome. He has proteinuria since 1.5 years old, but his genetic testing for Alport turned out to be negative. He has been on ACE Inhibitor for a year now.I'm looking…See More
"Leta, what an amazing support (literally) you have been to your husband! So happy to hear that you are both well, and living your best loves possible! Wishing you both continued good health and happiness! Thank you for the info. I really…"
"You have a really big chance to lower down your meds because you had 6/6 matched and it's your sister! Congratulations!
For me and my husband, he would never get the prednisone out of his rejection meds. You may have the chance to…"
"I did have the bk virus as well but I have never really shown a viral count. Once my levels are at zero for cmv they are going to do a kidney biopsy to see if my body is accepting the kidney as it’s own. My sister donated a kidney to me and we…"
"I agree with you about getting any information about CMV here.
There are few viruses that after organ transplant can affect a person! My husband and yourself got the same virus. Some will get the BK virus and and C-diff, ESBL and…"
I haven't been in this site for a year now... wow, that's more than 12 months.After all, life must go on... work, play, work and play!Robert and I had been so busy doing things that we love the most travelling.For the last two years, every month of…See More
"Thank you for responding. I hope that things continue to go well with your husband! There doesn’t seem to be much information on this site about cmv. I am now doing weekly blood tests and it seems to be going down each week"
Sorry I wasn't able to answer you right away.
To answer you questions;
1) After the ordeal of staying at the hospital for a month to treat the cmv for Robert, he's fine now - he's just reached his 50th months of…"