Welcome to Kidney Connect, an online social network for people living with - and affected by - kidney disease. Please introduce yourself here.

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Hi

I live in Kitchener and in January 2010 I was diagnosed with Chronic Kidney Failure and the reason was unknown. I was on hemo and then PD.  As part of my transplant work up it was determined my kidneys might have failed due to autoimmune disease but the test results were mixed.  In May 2011 I received a kidney transplant from my mom.

Cheers

Janet

Welcome Janet -what a fantastic mom you have! I hope you are doing well with your new kidney!

Yes I agree :)

Wow your story sounds similar to my story, was your autoimmune disease IGA?

that was/is mine

post strep...IGA

Tim, 

I'm not sure if you remember me, but we went to RockPointe Church together. I am a friend of Alexandra's.

My 3 1/2 year old godson was recently diagnosed with Reflux Nephropathy and it is stage 5, and his kidneys are failing. He is in need of a kidney transplant and I am looking into becoming a donor for him, if it's possible. 

I'm scared. 

Hello everyone! My name is Iain McLaren and I am the National Online Solutions Manager for The Kidney Foundation of Canada. We're very excited about launching this new social network and hope it will prove to be a helpful service for people living with - and affected by - kidney disease. Please feel free to private message with me your thoughts or send me an email at iain.mclaren@kidney.ca. Remember, this is YOUR network, so your feedback is vital as we work to ensure this service is the best it can be. Thank you, and welcome to KidneyConnect.ca!

Good Day Iain

Nice to have a canadian forum. Approaching 2 years on dialysis(in center and home). Hopefully I will make the transplant list soon. 2 more tests and a sleep study to go. What is longest you know of for transplant and dialysis survival? Is there any truth to rumour of artificial kidney in next 5 years? 

thank you

Hi I just saw your question and here is one answer for you: http://www.kidneydoctorbradenton.org/2013/09/can-we-create-artifici.... This website has a lot of really good, accurate information. Good Luck to you!

Good Day Marcia

Thank you for your reply. Some excellent blogs on number of different kidney disease related issues. Recommend other members take a look.

Hi everyone

My name is Chantal and I had a kidney transplant in 1998 at the age if 12 it is now rejecting but the good news is I have surgery on Oct 2 for my second transplant. My boyfriend and I were not a match. We register for the living paired exchange program , do he will be headed to Quebec City sept 30 and he will be donating a kidney oct 2.

I am a 48 year old wife and mother to 2 daughters.   I was diagnosed with diabetes at  age 8.  I started on peritoneal dialysis in 2006 and continued for 9 months at which time, I received a kidney and pancreas transplant in Feb 2007.  It has been an amazing blessing to have received.  I no longer have diabetes and have been able to return to work and many other activities that I enjoy.  I have had several episodes with possible rejection occurring, but was able to be treated with high dose medications that stopped the rejection.  I am grateful for all the support I have received from the kidney foundation and think this network is an awesome idea. I am involved with the peer support group through the Kidney Foundation and I have heard from many people that there is a huge need for support groups to help each other out!!

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Call Toll-Free: 1 866 390-PEER (7337)
A Kidney Foundation Program Coordinator will talk with you and discuss your request to be matched with a Peer Support Volunteer.

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