Welcome to Kidney Connect, an online social network for people living with - and affected by - kidney disease. Please introduce yourself here.

Views: 22854

Reply to This

Replies to This Discussion

Hi

I live in Kitchener and in January 2010 I was diagnosed with Chronic Kidney Failure and the reason was unknown. I was on hemo and then PD.  As part of my transplant work up it was determined my kidneys might have failed due to autoimmune disease but the test results were mixed.  In May 2011 I received a kidney transplant from my mom.

Cheers

Janet

Welcome Janet -what a fantastic mom you have! I hope you are doing well with your new kidney!

Yes I agree :)

Wow your story sounds similar to my story, was your autoimmune disease IGA?

that was/is mine

post strep...IGA

Tim, 

I'm not sure if you remember me, but we went to RockPointe Church together. I am a friend of Alexandra's.

My 3 1/2 year old godson was recently diagnosed with Reflux Nephropathy and it is stage 5, and his kidneys are failing. He is in need of a kidney transplant and I am looking into becoming a donor for him, if it's possible. 

I'm scared. 

Hello everyone! My name is Iain McLaren and I am the National Online Solutions Manager for The Kidney Foundation of Canada. We're very excited about launching this new social network and hope it will prove to be a helpful service for people living with - and affected by - kidney disease. Please feel free to private message with me your thoughts or send me an email at iain.mclaren@kidney.ca. Remember, this is YOUR network, so your feedback is vital as we work to ensure this service is the best it can be. Thank you, and welcome to KidneyConnect.ca!

Good Day Iain

Nice to have a canadian forum. Approaching 2 years on dialysis(in center and home). Hopefully I will make the transplant list soon. 2 more tests and a sleep study to go. What is longest you know of for transplant and dialysis survival? Is there any truth to rumour of artificial kidney in next 5 years? 

thank you

Hi I just saw your question and here is one answer for you: http://www.kidneydoctorbradenton.org/2013/09/can-we-create-artifici.... This website has a lot of really good, accurate information. Good Luck to you!

Good Day Marcia

Thank you for your reply. Some excellent blogs on number of different kidney disease related issues. Recommend other members take a look.

Thanks for the info!! Exciting isn't it!!

I just joined and was very happy to see a Canadian support site and I am still trying to find my way around navigating around.  I have also joined the Kidney Kitchen Cookbook

It would be nice to have some kind of forum where we could discuss, ask questions and exchange ideas about diets.  I have just been diagnosed, my GFR is 39, my sodium, potassium and phosphorus levels are are normal.  I am not diabetic but have been monitoring at home for about 3 years and have taken a seminar on Diabetic Education at our clinic.  My blood pressure is now very good (as I have started reading and understanding labels better and also monitor at home).

I live in Bruce Peninsula and will have to see a Nephrologist in London Ont and although there is a Kidney satellite centre in Owen Sound, I will have access to it if/when I enter dialysis.  Having said all that, people say that I should immediately adopt a Kidney friendly diet, but I don't know what to focus on, what to avoid considering my values are all within normal range.

Thank you 

RSS

Members

Prefer to connect with someone by telephone?

Call Toll-Free: 1 866 390-PEER (7337)
A Kidney Foundation Program Coordinator will talk with you and discuss your request to be matched with a Peer Support Volunteer.

© 2017   Created by Louise.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service