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A group for FSGS Patients.
Latest Activity: Apr 4
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At 19% function. FSGS is what my mom had, and after me donating a kidney to her, it was discovered I too have it. I'm looking at a transplant, but also trying to decide whether to do hemo or Pd. My mom has done Home Hemo and is sick alot. Just looking for some people who do PD who can tell me the pros/cons etc.
Hi Wendy - I am currently off and will remain off until I can get the process of starting dialysis but hope it's short term (my daughter recently had surgery and was in rehab for 2 months and due to the stress I was off).
I will be starting the process with a email to my doctor tomorrow, to let him know I have chosen PD. Hopefully I will be a candidate.
Thanks for all the information
Hi Wendy I was diagnosed with FSGS in 2003 and I am waiting for a transplant (I have a live donor but he is not a match so he is signing up for paired exchange program so we can try to see if there is match Canada wide).
In the meantime I have to start dialysis - I need to decide between PD and Hemo. So I have started doing some reading and I still don't know which way to go.
How is your daughter doing? As per my post I was diagnosed in 2003 - I have just started to look for a donor my husband will be getting tested soon to see if he can donate.
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