Transplant Recipients

This is a group for people who have received an organ transplant. Share stories of your surgery, recovery and more!

Members: 35
Latest Activity: on Tuesday

Discussion Forum

How long have you had your transplant

Started by angieskidney. Last reply by Ron Grant on Tuesday. 17 Replies

I am coming up on my transplant anniversary next month but not sure if that would actually be considered the anniversary since it did not work at first and I couldn't come off dialysis completely…Continue

Tags: anniversaries, length, transplant

Hair loss after 7 weeks of transplant.

Started by Mar-bar. Last reply by Lori Feb 7. 3 Replies

Hi my name is Mary. On December 6 2016, i had a kidney transplant. Both of my kidneys were removed because they were covered in cysts (polycycstic) a total of 23kg. Too big for my body.Recently my…Continue

Research Participants needed!

Started by JRaymond Mar 19, 2015. 0 Replies

Hi Everyone!My name is Josee Raymond and I am a Master of Health Studies student in the Faculty of Health Disciplines at Athabasca University. As part of my Master Thesis requirements, I am…Continue

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Comment by pdboy on December 10, 2017 at 11:47

Congratulations Kim  

Please pass along our thanks and best wishes to your sister.

I am in my 9th month following transplant. Creatnine came down to 200+ range. I am feeling well. Platelets have dropped for some reason. Going to Hemotologist to try and determine cause. Still need to be aware of diet as potassium still gets high. Diabetes more controllable. Benefits far outweighing issues.

Continued success. It gets better with time. Enjoy the holidays. This one will be memorable. 

Need a laugh, look up mistletoe .... 

Merry Christmas to all.


Comment by Kim Edwards on December 10, 2017 at 7:48

Hi all, I just had a kidney transplant on Wednesday December 6th! My sister donated a kidney to me. She is doing well and already at home, she went home on Friday. I am still at lhsc, my creatinine went down to 102 but then went up to 118. It’s 111 today, they think maybe they are giving me too much tac, so they have lowered its I am feeling pretty good, been up walking. Some discomfort in my incision but overall feeling good. Can’t wait to escape and be home with my family! It has been an amazing experience so far and I can’t say enough about the dr’s and nurses here.

Comment by lorlee99 on May 19, 2017 at 15:35

Hello fellow transplanties! I am curious about other problems you have had to face after transplantation other than renal issues. For instance, I have diabetes now and multiples skin cancers as well as problems with my bowel "flora"....not good. How about any of you?

Thanks for any shared experiences.


Comment by Lori on November 7, 2015 at 20:46

Hi Elizabeth:  I was on Peritoneal  dialysis for 15 months. There are options for PD. You can go to the hospital and have it done 3x weekly for you can do the treatment at home.  I was on the nighttime cycler.  I connected to the machine for 9 hrs every night and didn't have to do any exchanges during the day.  This allowed me to work and go about my day.  The general blog on this site talks about PD versus Hemo.  You will be able to find info on this.  I have been post transplant since January 2015.  After the recouperation period, I have to say I feel great.  Much more energy. I don't have to be on a renal diet anymore so all the food restrictions have been lifted.  I do take alot of meds tho; 3 anti rejections drugs that have some side effects but I can handle that.  If you want more info I would be happy to reply again to you.  Just ask!  

Comment by Elizabeth on November 4, 2015 at 10:30
I just got news from Dr that I will be starting process for kidney transplant testing. I would love to hear from someone what experience was on dialysis and post transplant. Which one would you recommend for treatment. Im still very new to all of this. Thanks.
Comment by Lori on June 15, 2015 at 20:32

That"s great Sharri.  It feels so good when  the clinic visits are reduced.  I go monthly and only need blood work done weekly.    We're graduating!

Comment by Sharri Stull Anderson on June 15, 2015 at 14:36

3 months post transplant check up last week.  Creatnine sitting at 72 and all other numbers great.  No BP meds.  Only have to go to clinic once a month now.  YEAH


Comment by Lori on June 2, 2015 at 21:10

On June 4 in Toronto, there is a gala hosted by 3 downtown hospitals for Donor Appreciation Night.  My husband donated his kidney anomously (sp!) in order for me to receive one anomously (sp again).  I'm going as his guest.  Am looking forward it.  So greatful this is possibility for people

Comment by Lori on May 25, 2015 at 14:56

I just joined this group.  I had a kidney transplant in January of this year.  I spent 8 days in the hospital. I had a couple minor setbacks, but am feeling great now.  I have returned to work and try to walk every day.  My donor was unknown to me.

Comment by Sharri Stull Anderson on April 21, 2015 at 10:48

My husband donated his kidney to me on March 4 2015. Finding a whole new way of life.  My first 4 days were great I actually only had one pain med in recovery and nothing after that.  I was up and in his room at 6am the next day waiting for him to wake up.  Day 4 phosphorous bottomed out and they gave e a med to bring it up.  Made me sick for 3 days lost 8kg.  Things are going better now except for extremely low blood pressure. Wondering if anyone experienced this.


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