lorlee99
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  • Edmonton, AB
  • Canada
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Hemo vs. peritoneal dialysis

Started this discussion. Last reply by lorlee99 Feb 12. 4 Replies

Hello everyone,I was just in clinic with my nephrologist and I was told that if I have a second transplant I will likely have my skin cancers get much worse to the point of skin grafting and…Continue

Tags: dialysis, chosing

 

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lorlee99 replied to Barry Cohn's discussion Newbie with a question
"Hello Barry, The previous comments are definitely valid. There are generally a few factors that the Dr will use to determine your need for dialysis, but this should be a discussion including what Jo said. Do you know what type of dialysis your Dr is…"
Mar 22
lorlee99 replied to Eleanor Sheets's discussion diet for chronic kidney disease
"Hi Eleanor, get hold of your local branch of the Kidney Fndtn: they should have booklets that gives you all sorts of info about CKD ( make sure you know what stage of CKD you are in, as they have 2 books). The renal/diabetic diet is a challenge for…"
Mar 22
lorlee99 and Eleanor Sheets are now friends
Mar 22
lorlee99 replied to The Kidney Foundation of Canada's discussion Introduce Yourself!
"That's awesome info!! Thanks sooo much. Loretta"
Feb 21
lorlee99 replied to The Kidney Foundation of Canada's discussion Introduce Yourself!
"Hi Shirley, I'm like you, a bit OCD! LOL. Also, it always amazes me to see/experience what our bodies, minds and emotions can handle when they have to! Of course, everyone handles things thrown at them through life differently, but all in all,…"
Feb 20
lorlee99 replied to The Kidney Foundation of Canada's discussion Introduce Yourself!
"That's great that you're still considered "young"! :) I'm sure I'd be on the "old" list..I'm 53 next month... Loretta"
Feb 19
lorlee99 replied to The Kidney Foundation of Canada's discussion Introduce Yourself!
"Hi Lori, When you said the surgical site is "uncomfortable", can you be a bit more descriptive? I will be having this surgery potentially in the next 3 months in Edmonton, AB. Can you maintain your usual activities? Did you need opioids…"
Feb 19
lorlee99 replied to The Kidney Foundation of Canada's discussion Introduce Yourself!
"What a frustration!! No wonder you are such a big help here on this forum!! Hugs."
Feb 19
lorlee99 replied to lorlee99's discussion Hemo vs. peritoneal dialysis
"That's great info! Thanks."
Feb 12
MrsCora replied to lorlee99's discussion Hemo vs. peritoneal dialysis
"Loretta, I didn't do home hemo. But I had a few friends who did. It took about 6 weeks of daytime in-hospital training to get it down pat. But once they were doing it (slow and steady overnight 6 days per week), they did amazingly well. My one…"
Feb 12
MrsCora and lorlee99 are now friends
Feb 12
lorlee99 replied to lorlee99's discussion Hemo vs. peritoneal dialysis
"Thanks for your feedback. Can you tell me more about your home hemo? Did you have trouble with your BP then? Did your do nocturnal runs , conventional runs (3-4hrs) or short runs 2-3 hrs?  How limited is the diet/fluids on hemo vs.…"
Feb 12
MrsCora replied to lorlee99's discussion Hemo vs. peritoneal dialysis
"I was on hemo for a year with a neckline. It was do-able, but a bit of a pain with the time commitment of 3 mornings a week. And it was the entire morning. 4 hours dialysis time, 15 minutes set up and take down (so 1/2 an hour) and then the travel…"
Feb 12
lorlee99 posted a discussion

Hemo vs. peritoneal dialysis

Hello everyone,I was just in clinic with my nephrologist and I was told that if I have a second transplant I will likely have my skin cancers get much worse to the point of skin grafting and reconstructive surgeries! So, of course there are 3 other treatment options: HD, PD or just conservative/palliative. I was never on dialysis, I was very fortunate that I received my transplant without having any dialysis! Now, I may not have that option & must chose between HD & PD. I am wondering…See More
Feb 12
lorlee99 commented on lorlee99's blog post Dignity, death, & diarrhea
"Thanks Kim Edwards! Being home is such a great place to be!!!"
Dec 29, 2017
lorlee99 replied to The Kidney Foundation of Canada's discussion Introduce Yourself!
"Hey Jasper. So sorry to hear of this downward turn for you! Feel free to "talk" as much as you need! Thinking of you."
Dec 29, 2017

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Dignity, death, & diarrhea

Posted on December 23, 2017 at 17:19 2 Comments

Well, I haven't "blogged", so will give it a "whirl". 

First of all: Merry Christmas to everyone!!!! I start with this because I am just home yesterday after some "quality time" in hospital. I have been transplanted x 18 years & very grateful for it!! However, as many know, this does come with costs, namely being more prone to infections & "special" things...

The beginning of December I knew I wasn't feeling great, but just thought it was the usual December influenza,…

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At 17:58 on May 15, 2017, Mark said…

Hi Loretta,

So your cadaver kidney lasted 17 years? That is indeed a blessing as I was under the impression it does'nt last that long! I was diagnosed with Ig A Nephropathy in 2010 and it has been downhill since then. I was not very keen on a transplant initially as since Ig A is an autoimmune disorder,there is no guarantee the immune system will not attack the transplanted kidney. The Dr told us there is a 30% chance of that happening as the immune system will be suppressed with drugs to prevent rejection in any case. I just turned 52 years old in March and was working in the oil patch as a Process Engineer but got laid off in mid February!! You are in Edmonton right? I am in Calgary but my wife has 2 aunts in Edmonton. Since I am off work,I have been resting at home as I dont sleep too well at night. I am on all sorts of medications to control my blood pressure which along with the PD is contributing to my insomnia!! I like to read and love watching soccer and other sports on TV. I am originally from India,so like to watch cricket on the internet too.I used to love hiking and playing badminton too but now my health does not allow it... 

 Hope things work out for you with a new transplant rather than going back to dialysis...

At 16:43 on May 15, 2017, Mark said…

Hi Loretta,

Thank you for the "welcome hello". I am doing ok I guess. I have been on peritoneal dialysis since the past 3 years now and am just waiting to get a transplant from a cadaver if one becomes available... I joined a little while ago but have not really posted anything.Feel tired all the time... Last month I got a call from the hospital to say a kidney had become available but I was on standby to receive it,if things did'nt work out with the original recipient. It was a nerve racking time but in the end,I was not called in as things worked out for the intended recipient! Now just waiting my turn I guess...

 
 
 

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