now i am used to dialysis no hope for transplant .my mom is only hope and after all painfull test done they said her gfr is 75 they need 80 so they refused to transplant. iam very disoppint and heavy heart after listen to this nnews.but what do i do just waiting some day i got transplant.
Added by mark on July 9, 2017 at 18:02 —
Dying is an inevitable part of life. In the manner that we celebrate and discuss the process of birth, why we can’t discuss the process of death? Even for medical professionals, who have seen people… Continue
Added by psychonephrology on June 15, 2017 at 9:30 —
My name is John Fife, from Perth, Ont.
I was diagnosed with an auto-immune disease called membranous nephritis back in 1991. For years this was manageable with medications, mostly blood pressure meds. My creatinine levels were around 160 for several years.
In Dec 2016 I suddenly developed a second auto-immune disorder called crescentic nephritis and my creatinine went to over 400 and my GFR down to 11. I was admitted to hospital and while there the creatinine went… Continue
Added by John Fife on June 1, 2017 at 9:41 —
It's been almost a year since my husband got his transplant and things have been going well. His creatine levels are in the normal range and he is not retaining fluid at all. The only thing he has to be careful of is foods with potassium in them. He has so much more energy and feels so much better. He comes in the house now, saying that he has to go pee, instead of coming in and being exhausted or being at dialysis. He is planning on writing a letter to the donor's family again. He did… Continue
Added by wildmojo on May 16, 2017 at 18:19 —
About 1 in 10 people develop some degree of chronic kidney disease (CKD). It is imperative to follow certain dietary restrictions if you are diagnosed with a kidney disease, which sometimes, can be difficult to manage. Technology has made things easier for us and with the development of smartphone apps, taking care of yourself is easier than ever. Today, we have come up with some useful apps that are designed especially for kidney patients.
To know more… Continue
Added by psychonephrology on April 26, 2017 at 11:14 —
This week is a National Organ and Tissue Donor Awareness Week - from April 23 - 29.
It will be three years next month (May 27) after I donated my left kidney to my husband, Robert Lee.
Having two healthy kidneys is a blessing. By donating one of your spare is a… Continue
Added by Leta on April 24, 2017 at 20:15 —
Hi, I'm all new to this. I came across this while doing some online research for my 1 1/2 year old daughter who is at stage 3 kidney failure. Both kidneys are damaged from a rough start at birth. We're looking at a transplant in the future.
Right now she seems to be doing great other than bp medicines she's on, watching her diet and getting her to eat good.
I'm hoping to meet other parents on here that have been through a transplant with their child or need one at some point. Also,… Continue
Added by Sarah on April 18, 2017 at 0:34 —
Death can be a difficult subject and most of us feel uncomfortable talking about it. Death, however, does not differentiate, being an inevitable outcome for all of us. Personal meanings of death can vary, though. Through the ages, for most of us, the best way to deal with it was with denial. Maybe this is the reason that most of us don’t think it’s appropriate for children to know about loss or death. But many children may encounter some form of loss, even in their early lives.
Added by psychonephrology on April 3, 2017 at 15:30 —
We can live with one healthy kidney.
Please consider to be an organ and tissue donor.
Talk to your family and discuss about it.
A donor can save 8 lives!!
I am a living proof of a living kidney donor. Anyone can be an organ and tissue donor.
These two wonderful kidney transplant surgeons helped me to fulfill my promise to my husband. In two months we will be celebrating our 3rd… Continue
Added by Leta on March 29, 2017 at 12:30 —
Wow, today is exactly 34 months (in two months will be three years) celebrating and commemorating my husband's kidney transplant.
Everyday of my life I am so thankful for my husband, for keeping up with his new kidney (not new anymore), well it's now a 34 months old… Continue
Added by Leta on March 27, 2017 at 3:00 —
Living kidney donations save many lives every year. It can be best described as the donation of a kidney from a healthy person, made of his or her own free will. Donating an organ gives you a sense of an accomplishment, as you were able to save another person’s life. You can read many blogs where the donors have shared their experiences before and after the kidney transplant. One thing that is common to all of the donors is… Continue
Added by psychonephrology on March 23, 2017 at 11:03 —
Hello my name is Toni and I am starting dialysis in about a month. I have chosen to do APD as my treatment for stage 4-5 CKD. I have been diabetic for over 15 years and just in the last two years starting having complications due to Kidney Failure. My mother is also on Hemo dialysis and has opted out of getting a transplant. I want to regain some quality of life prior to becoming sick and continue working, so PD was the better option for me. I will have my consultation for catheter placement… Continue
Added by tcstyle23 on March 20, 2017 at 15:51 —
Can both co-exist?
Society’s rules and expectations of behavior by family caregivers can seem quite onerous. A caregiver is anticipated to be a selfless individual who keeps the needs of the patient above everyone else’s, including his or her own needs. He/she looks after physical, medical, emotional,…
Added by psychonephrology on March 17, 2017 at 11:01 —
We all feel burnout sometimes, and the helping professions like that of physicians and psychologists are also not immune to it. Having a perfect work-life balance seems like an illusion. In 1970, American psychologist Herbert Freudenberger coined the term “burnout” to describe the consequences of severe stress and high ideals experienced by people working in “helping” professions. Later he came up with a self-help book on the same subject matter “Burnout: The High Cost of High… Continue
Added by psychonephrology on February 23, 2017 at 11:03 —
Hi..I was wondering if anyone doing hemo at night?
I am just starting at home and I am still worry about alarms and problems.
Do they use a different machine for night dialysis?
I don't think I could sleep, I would be too worry.
Added by Denise on February 20, 2017 at 8:29 —
There are many books and articles that deal with people living with kidney disease. Our current review is a different genre of book, a memoir of a lady who had three kidney transplants. Angela Balcita, the recipient and the author of this book, shares her inspiring story.
Angela calls herself and her husband “the most sensational tragic comedians in the world,” finding humor in the most distressing circumstances she encounters in her life. Their mantra is not to take… Continue
Added by psychonephrology on February 2, 2017 at 11:11 —
How a sensitive health care professional can make a difference
We all have, probably more than once, visited hospitals and diagnostic centers, and I am sure, most of us experienced some level of anxiety. The most anxious moments can be while waiting for test results. This anxiety of the dreaded unknown is often significantly modified by how these results were communicated to us, better or worse.
Words can inspire. And words can destroy. Choose your words well.
- Robin… Continue
Added by psychonephrology on January 26, 2017 at 11:42 —
On June 22,2016 I had my transplant Things where going fairly well. Until I got infection in my kidney at the end of Oct I was put in the Hospital for 5 weeks at the Ottawa General.They tried to save the kidney and they where trying everything they can think of. On November 27 they had too take it out. I have been upset about this but I really cannot do anything about it. I am back on dialysis which sucks really bad. I just have to take it one day at a time. Any comment is good for me.… Continue
Added by dawncynthia on December 28, 2016 at 8:50 —
Whenever my health issues begin to overwhelm me, I sing the lyrics from the movie "Annie" ~ "The sun will come out tomorrow..." I have always been of the mindset that even behind the darkest clouds the sun is shining.
I am a believer in the validity of many sayings ~ "The darkest before the dawn"; "Nothing ventured ~ Nothing gained"; "What doesn't break us ~ Makes us stronger", and my personal favorite is:… Continue
Added by psychonephrology on December 20, 2016 at 13:49 —
Greetings to all, Continue
Just a little up date here. I have now successfully made the transition from peritoneal dialysis to Hemo (after some weeks of illness with peritonitis.)
Bottom line is I am doing much better now, the peritonitis is long gone and to my amazement, I actually have been doing better on Hemo. By that I mean, I am experienced improved energy, I am gaining weight and have a much improved appetite. For 2 and 1/2 years I was probably one of the biggest fans on…
Added by John on December 16, 2016 at 9:30 —