All Blog Posts (323)

Need help deciding on what kind of dialysis to chose and/or obtaining a kidney

I would love to blog with people regarding the types of home dialysis to choose. I am active and still want to travel to other countries. I want the type that cleans your blood the most, but allows more freedom, less equipment, less drugs and less dietary restrictions. If anyone can share their type of dialysis and what they like about it ( I know now much to like) that would be so helpful.

Most important,  I would love a kidney transplant before I start dialysis, which may be a few…

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Added by Connie Irwin on April 16, 2018 at 14:47 — No Comments

For Eleanor Sheets

Eleanor, this is what I just left for Barbara.

Hi Barbara, You live in Gravenhurst! and I am in Washago! And Eleanor is in Huntsville! Small World! LOL! Do you see the Kidney Doc's in Orillia? I am very impressed with them, and with the Kidney Care Centre at the hospital. They will truthfully answer all your questions.            jo

Added by jo marshall on April 11, 2018 at 9:54 — No Comments

my first appointment with nephrologist

Hi There:

Today (Mar 19, 2018) I saw the nephrologist for the first time and was shocked to learn that I have CKD (Chronic Kidney Disease).  The doctor was surprised that my family doctor had not told me this as he had the urine test results from 4 months ago. 

Now I am scared. I have so much information to absorb that I am sure I will drown in it.

My GER is 29%. Now what?????

Anybody out there can reassure me that this isn't so bad or some other words of…

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Added by Eleanor Sheets on March 19, 2018 at 22:32 — 2 Comments

Death and Social Media

In July of 2013, NPR Weekend Edition host Scott Simon began tweeting from the ICU of a Chicago hospital. For the next week, as he watched his mother’s condition worsen until her eventual passing, he shared everything from interactions with ICU nurses to his mother’s…

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Added by psychonephrology on January 18, 2018 at 13:57 — No Comments

A shaggy Dog Organ Recital

A shaggy dog organ recital. My kidneys!  Tolvaptan, schlerotherapy 

The wonders of modern medicine!

I have a hereditary disease called polycystic kidney disease . Interesting! I inherited it from either my mother or father and my daughters have a 50% chance of acquiring it. No evidence they do. It results in the growth of cysts on the kidneys until the number and size of them shuts down the kidneys, necessitating dialysis and/or transplants.

Years ago I checked in with my…

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Added by Jerry diakiw on January 16, 2018 at 8:03 — 1 Comment

Dignity, death, & diarrhea

Well, I haven't "blogged", so will give it a "whirl". 

First of all: Merry Christmas to everyone!!!! I start with this because I am just home yesterday after some "quality time" in hospital. I have been transplanted x 18 years & very grateful for it!! However, as many know, this does come with costs, namely being more prone to infections & "special" things...

The beginning of December I knew I wasn't feeling great, but just thought it was the usual December influenza,…

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Added by lorlee99 on December 23, 2017 at 17:19 — 2 Comments

Four and a quarter hours

Can anyone tell me how the "standard time" for dialysis came to be 4.25 hours?

Added by Michael Collinge on December 23, 2017 at 8:16 — 1 Comment

Mindful Yoga for Managing Anxiety

Author: Lisa Mitchell

Whether it is the patient or the caregiver, diagnosis of a serious health condition like the need for dialysis therapy can bring turmoil and trigger anxiety.

The onset of anxiety affects you not only mentally but…

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Added by psychonephrology on November 29, 2017 at 12:57 — No Comments

Evidence-Based Medicine

Evidence-based medicine (EBM) is the use of research-informed information to direct the decisions of healthcare professionals in the delivery of services and management of the system. In the past several decades, evidence-based medicine has gain popularity in the United States, making it the standard mode of working in health care provision. In the application, the practitioners prefer applying principles that are based on scientific research and clinical studies rather than experience and…

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Added by Stephanie McMills on November 24, 2017 at 3:18 — No Comments

“I Don’t Want Dialysis” – Living with a Mother’s Wish

I still vividly remember her last night here. She wasn’t fully conscious. Just enough to keep pulling down the facemask providing her with oxygen and opening her eyes to stare at me, before she resumed dozing off. I have no idea if she knew I was there. Yet, I still sat at her…

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Added by psychonephrology on November 16, 2017 at 13:37 — No Comments

I’m new

Hi I’m new here,

I am 46. I have a GFR of 18 I’m just wondering how someone should be feeling day to day with a GFR of that number and is it normal to continue working at this point? I am not working at the moment. I am just exhausted all the time and am not really that alert. I’m feeling like a lazy bum all the time.
I’ve never been given any idea what is the norm is at this stage.

Added by Sass jane on November 12, 2017 at 18:36 — 2 Comments

Latest blood test results

EGFR 22 bicarbonate 19 hemoglobin 104 hematocrit 0.302 rbc 3.11 parathyroid 21.8 albumin creatinine 83.1 RDW 15.4 MCH 33.4

Low potassium diet helped and my potassium is in normal range now so so,e good news.... not gonna lie feeling a little lost about what to eat... anemic but can't have a lot of what has iron in it...

Added by SMK on September 10, 2017 at 14:41 — 2 Comments

Latest blood test results

EGFR 22 bicarbonate 19 hemoglobin 104 hematocrit 0.302 rbc 3.11 parathyroid 21.8 albumin creatinine 83.1 RDW 15.4 MCH 33.4

Low potassium diet helped and my potassium is in normal range now so so,e good news.... not gonna lie feeling a little lost about what to eat... anemic but can't have a lot of what has iron in it...

Added by SMK on September 10, 2017 at 14:41 — No Comments

3 years diaylasis

now  i am used to dialysis no hope for transplant .my mom is only hope and after  all painfull test done they said her gfr is 75 they need 80 so they refused to transplant. iam very disoppint and heavy heart after listen to this nnews.but what do i do just waiting some day i got transplant.

Added by mark on July 9, 2017 at 18:02 — 1 Comment

Should moving towards the end of life begin a conversation?

Being Mortal

Dying is an inevitable part of life. In the manner that we celebrate and discuss the process of birth, why we can’t discuss the process of death? Even for medical professionals, who have seen people…

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Added by psychonephrology on June 15, 2017 at 9:30 — 1 Comment

New Member

Hello:

My name is John Fife, from Perth, Ont.

I was diagnosed with an auto-immune disease called membranous nephritis back in 1991. For years this was manageable with medications, mostly blood pressure meds. My creatinine levels were around 160 for several years.

In Dec 2016 I suddenly developed a second auto-immune disorder called crescentic nephritis and my creatinine went to over 400 and my GFR down to 11. I was admitted to hospital and while there the creatinine went…

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Added by John Fife on June 1, 2017 at 9:41 — 1 Comment

1 Year Anniversary

 It's been almost a year  since my husband got his transplant and things have been going well.  His creatine levels are in the normal range and he is not retaining fluid at all. The only thing he has to be careful of is foods with potassium in them. He has so much more energy and feels so much better.  He comes in the house now, saying that he has to go pee, instead of coming in and being exhausted or being at dialysis. He is planning on writing a letter to the donor's family again. He did…

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Added by wildmojo on May 16, 2017 at 18:19 — No Comments

Smartphone Apps: A Patient’s New Best Friend?

About 1 in 10 people develop some degree of chronic kidney disease (CKD). It is imperative to follow certain dietary restrictions if you are diagnosed with a kidney disease, which sometimes, can be difficult to manage. Technology has made things easier for us and with the development of smartphone apps, taking care of yourself is easier than ever. Today, we have come up with some useful apps that are designed especially for kidney patients. 

To know more…

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Added by psychonephrology on April 26, 2017 at 11:14 — No Comments

NOTDAW - April 23 - 29

This week is a National Organ and Tissue Donor Awareness Week - from April 23 - 29.

It will be three years next month (May 27) after I donated my left kidney to my husband, Robert Lee.

Having two healthy kidneys is a blessing. By donating one of your spare is a…

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Added by Leta on April 24, 2017 at 20:15 — 1 Comment

Looking for mutual circumstances

Hi, I'm all new to this. I came across this while doing some online research for my 1 1/2 year old daughter who is at stage 3 kidney failure. Both kidneys are damaged from a rough start at birth. We're looking at a transplant in the future.

Right now she seems to be doing great other than bp medicines she's on, watching her diet and getting her to eat good.

I'm hoping to meet other parents on here that have been through a transplant with their child or need one at some point. Also,… Continue

Added by Sarah on April 18, 2017 at 0:34 — 2 Comments

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