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I don't think I will ever have it all figured out but 1 step at a time I guess. I got through cancer twice, 4 near death situations from heart issues not to mention major stressors still going on with divorce. Now my kidneys are taking a shot. Im not that easy to get rid of it seems. Lol. Take care.
Sounds like a plan. (and a correction, that was obvious anyway I suppose: When I said I just ate very restricted amounts of food, I'm not talking about everything, just the stuff on the 'no fly' list. Fill up on stuff that's not restricted. ) As far as salt, it's not that hard to adjust to a low salt diet, at least for me. I'll always be on one, with the occasional AWOL episode. And now, when I go to a restaurant, I'm often a case of "This tastes like I'm eating a salt lick!". Anyway, in the end it's pretty much as the song goes: "Life's what you make it"...regardless of what it throws at you. Sounds like you have it figured out.
Thanks Ron, great advice. After researching my face off online, lol, I was coming to the same conclusion. I had congestive heart failure last October so I had already got used to an almost no salt diet, that seems to be my nephrologist concern with my stage 3 right now. I am going to eat as I usually do with the things I love but limit portions and see how the tests come back. I have found a lust if super foods though and think I wil, in corporate them I my daily diet, things like garlic, apples, olive oil, red peppers, onion, fish lkme rainbow trout and salmon, cabbage and some berries. Thanks for your input.
When I was on dialysis (I had a transplant last year) I ate everything, just very restricted amounts. We had fries (homemade & oven baked..way better than the frozen variety)..we would soak or boil the potatoes (after being cut for fries) first. Then just moderate how many you can eat. Same with pasta sauce..I started using red pepper varieties on spaghetti, but then decided to just have the real McCoy, but just a small amount. (a couple tablespoons of flavourful sauce worked fine). I realized I'd rather enjoy a small amount of the real thing, opposed to a more generous portion of something I didn't really enjoy. And my bloodwork was always good. In my opinion, you don't have to completely give up anything. Just be restrictive re: how often you have it, and portion size. It's better than not having it at all!
Nòoooooooooo not potatoes. Im a stress eater, what do stress eaters do if diagnosed with kidney disease? Guess i will have to revert to sucking my thumb again . Lol. Sincerely though thanks for the info.
Hmm I’ve tried a few times to respond but it wasn’t working. Having white bread or pasta is better than having whole wheat. Also limit avocado, tomatoes and beans (chick peas, kidney etc) and of course potatoes.
Thanks for answering the questions. Getting these answers from someone like you who have been through it realky helps to give perspective to someone like me who has just been diagnosed. I have one question on renal diets though. I saw conflicting info on whether to eat whole grain carbs or white carbs as one site suggested. Do you know which is easier on the kidneys? Thanks.
I did see a renal dietician once I had less than 15% functioning. Mostly to control potassium. They never had me monitor my phosphorus.
Thank you so much for the suggestions. I actually have a really complicated medical history, in Oct last year had congestive heart failure that they think set off the CKD. Diet is more complicated for me as I have to take potassium supplements for my heart after a bone Marrow transplant for cancer almost 40 years ago. I read Book One from the nephrologist and asked him about diet and potassium etc and he said to just worry about the salt. I asked my GP and she said to stay on the potassium. Still I feel useless in helping myself right now but I'm seeing my cardiologist in a week so meds might change then. You're right though about stage 3 because my GP said my potassium levels were fine. Not much mention of the Phos. I have found it strange that diets aren't easier to find but it's probably because monitoring of levels is key before changes are made. Did you get a renal dietition?
Before you make major changes to your diet you should speak to your nephrologist. It’s always a good idea to have a low salt diet, but before you give up everything that’s good to eat (I love potatoes!) you should ask if your potassium and phosphorus levels are a concern. In stage 3 you may still have relatively normal levels. I didn’t really make major overhauls to my diet until I was on stage 5 CKD as up til then my levels of potassium and phosphorus were in the normal range. For me eating a healthy diet and regularly exercising was what kept me going.
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